April 26, 2009
Did nothing all weekend. Tired. Headache when I move around a lot. GT on the sofa.
This is getting on my optic nerve
>> aka: “Bemoanings of a girl who doesn’t have time for chondrosarcoma” aka: “A personal blog to keep you updated in a manner that lets you choose your preferred amount of mumblegrumble”…. (I’ll change the name to something smart and appealling after my raw emotionality matures into reflections of a steadfast weathered conqueror.) ha!
Did nothing all weekend. Tired. Headache when I move around a lot. GT on the sofa.
Nothing like a brisk walk in an April downpour… Since I park in the neighbourhood I used to live (more…)
Thank goodness I don’t have to worry about the physics of the universe ceasing to work.
Now that I’ve put things in perspective, (more…)
So that smell I mentioned yesterday? Ozone.
Apparently every 2-3 patients will experience (more…)
Some people are asking questions, and the answers are buried beneath lots of commentary, so here are:
___________________________________________________________
Radiation - Start day April 2, and every week day until May 22. Today was my 4/35 treatment.
History: Symptoms started January 2008 and intensified in May 2008. Referrals followed, from opthalmologist to neuro-opthalmologist to neurosurgeon in January 2009 when I was scheduled for surgery/biopsy. February 17, 2009 was surgery and diagnosis of sarcoma (rare form of bone cancer) was identified. Much of the tumour was removed, but impossible to get all of it, as it is close to criticial structures (internal carotid artery) and in the bone at skull base (front location: at back of sphenoid sinus; back location: making a move toward my pons). Radiation is expected to reduce the growth rate and prevent immediate reoccurrence.
More information: See the links at the right side, including a calendar which I keep updated, and some further information on chondrosarcoma.
Did you know that radiation is measured in units of Gray?
That’s right, and that’s ironic.
The international system (SI) unit of radiation dose expressed in terms of absorbed energy per unit mass of tissue. The gray is the unit of absorbed dose and has replaced the rad. 1 gray = 1 Joule/kilogram and also equals 100 rad.
http://hps.org/publicinformation/radterms/radfact79.html
Gray is the new rad, and is 100x radder than rad. How do you like me now?
It’s funny how many people have asked me if I was nervous about today. To tell you the truth, MRI’s are probably scarier than radiation treatments because (more…)